On Monday we went to Stanford and met with our Dr. We found out that Zack needs to go on a higher dose of Methotrexate which means he now has to take it through a shot. He has been on his meds for 5 months now and they say that he should be doing much better then he is. He still has his rash on his face and hands, his muscle strength is not as it should be and he now has arthritis in his right wrist. So he is still taking Prednisone and is doubling his Methotrexate. They want him to see a Physical Therapist 2 times a week to help him with his muscle strength. We really have felt that he is getting better and the Dr says he is but they want to be aggressive with this and really try and nip it in the bud. He has a better chance of less relapse in the future if we are aggressive now. Of course we want this but its going to be real tough. We start the new meds on Friday. With him starting Kindergarten we are hoping that he does well with all this change. We know he will. He has been a real trooper through this all.
As wise "old" woman has said to me that this is like a roller coaster, there will be ups and downs and when we go down we will loose our breath and our stomach will drop but we will go back up.
Thanks for all the support we have gotten from all of you, we really appreciate it.
No comments:
Post a Comment