Hi Friends and Family,
I just wanted to do an update for you all on Zack. We were asked to be part of a study at Stanford and we agreed to do it. Basically he will have 4 infusions, two weeks in a row and off for six weeks and then in January he has another two. The study is a 44 week study. They told us the first two might just be saline or it could be the medicine and the other two the opposite. We had our first one yesterday Thursday the 8th. We got to Stanford at 8 in the morning and ended up being there all day. We got home about 11:30 in the evening. He was supposed to be on the machine for only six hours he ended up being hooked up for twelve. We had some complications during the infusion which means we got the medicine this round, which is good. His blood pressure went really low and got a fever. With that we had to stop the infusion assess the problem and then go back on the I.V. and start all over. We thought at one point he was going to have to stay the night because things had to slow down. The DR came in and wanted to up the dose so we did not have to stay. She thought that would it would be more devastating on him if he had to spend the night. He was pretty agitated in the beginning of the infusion and after some medicine which knocked him out he was pretty good. He slept the whole last part of the infusion. So we will be doing it again next week and we hope that he will not have reactions as bad. We are hoping that this helps. We will do anything that we can to help him get back to "normal". We are so proud of him, he really held up good through it all. Today? Can't even tell he went through it. He really bounces back like a big rubber ball. Just a little tired but overall doing real good. Any questions feel free to ask. Thanks for all the support.
Michelle
No comments:
Post a Comment