I have created this Blog for all our family and friends to stay up to date on Zack's journey. Please come and visit as much as you want. Thank You to all our family and friends for all the support we have recieved over the past several years. Zack is very lucky to have you all in his life. You support means the world to us.
Saturday, January 5, 2008
12/6/07 update 6
Man oh man this SUCKS!!!! We went to the Dr yesterday for a follow-up on Zack's infusions and as our story goes it was not very good. He is going through a "flare up" and we have increased his medicine to get it under control again. I dont understand how this is happening while he is taking medicine and how he can have a flare up. It's like we are back to square 1. We just have to wait until his next infusion to see where we stand. The rash on his face is back and his Physical Therapist said his neck and legs are weaker. We knew going to the appointment that things were not so good. We could just tell. Im so sad for him. Keep your fingers crossed for him. I have to say that he is taking this all in stride. He is really a trooper. Just wanted to do an update
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Dermatomyositis
**DER MA TOE MY O SIGH TIS**
This is my way of sounding out his condition. It took me forever to try and say it and this is how I break it down.
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