Dr. appointment update

We saw Dr. Lee last Thursday and even though his blood test results still look good his rash on his face and hands are real noticeable again. We have decided to increase his new medicine (Prograf) up 2ml to try and get it all under control. We hope this will work, we go back for blood work in 2 weeks and see the Dr every 4 until we get it in better control. It seems like everything we have done helps one thing but not the other. Started the study and it helped muscle strength but not the skin so we did IVIG and that helped the skin than his muscles got weaker, started this new med and now his skin is being affected again. I'm not sure what to think, I wish they would find something that would help with both muscle and skin. I wish there was a cure for Cancer and Alzheimer's and Aids and Dermatomyositis. Maybe one day! Well, were going to keep our fingers crossed and our heads up and hope for the best. Things have to get better. Stay posted.