Update

It's been awhile, nothing really to update till now. Zack is having a set back right now and we are trying to wrap our heads around it. I picked him up on Wednesday and noticed that his face was a little red and blochy. I thought that maybe it was just because the sun was out and he was playing, the next day it was even worse and after a shower after school it did not get better at all. He also has been wetting his pants and very restless at night which I didnt put together until this morning when he woke up with sore legs. Well, that was my flashing red light that something was wrong. I emailed his Dr and she wants to see him on Monday so we went and did all his bloodwork today. I don't know what exactlly is going to be done as far as treatments go but things need to change. I will update again on Monday night. So sad that he is going through all this again.