Chicago 2010

We Dr. Pachman today and she is really encouraging me to stay and see another specialist on Wednesday but changing my airfare is way expensive. She wants him to see a GI Dr. She thinks that JDM is effecting other things now and wants to have some test run. She thinks his non eating is from this new medicine which means a med change may be in our near future. God only know whats next for him. We did blood work first which was good cause we got some results but she wanted more done which we'll do at home. She agrees his skin looks worse than last time and for the first time ever it's in his eye lids. Total bummer, she says he still has a mild case but very chronic, I don't like that! Remission will not happen again this year, she thinks more like 5 years at this point. He had a lot of blood work done and handled it very well. We will find out more results in 2 weeks when she calls us. We are at the Ronald McDonald House again and this place is really great. The things they do for families is really amazing! I will post another update when we hear back from Dr P.