Zack had an infusion last week and we found out that December will be his last infusion. Dr feels that it has done all it's going to do for him. He is pretty weak in the neck and hips and he should be getting better with the infusions but is not anymore. We are happy with the results that we have gotten from the IVIG infusions but things have just leveled out. It's hard to hear when something is not working when we were really hoping that this was the one to put him in remission. They are thinking of changing all his medicines and starting all new, which I have to say is pretty scary. Not knowing what is going to happen and what he will go through again is freaking me out. Keep your fingers crossed for him.
Due to all the changes with him he is seeing Jackie more frequent again. We are seeing her once a week again for awhile. This is not terrible for him since he still LOVES his Jackie. If you have read his Jackie story you will understand. If not it is to the right. Good thoughts for Zack! More info when I get it......
2 comments:
Shoot Michelle...I'm sorry you guys didn't get ALL the progress you'd hoped for, but glad you have had SOME good news. I bet changing the meds, will kind of kick his progress into high gear. What do I know, but it just kinda SEEMS like it'll make sense. Kind of like how great your hair looks the day you try a new shampoo...something different from the usual.
We'll continue to keep you guys in our prayers, and thank you as always for keeping us posted. See you in a few weeks and give Zmeister a hug from all of us!
Trysha
Oh my ... I didn't know that December was the end of this round of infusions. But, sometimes change is good! It seems, oftentimes, that stopping one thing completely and starting all over with something different makes a great difference. It's just like you guys are on a road trip. You have a destination in mind, but there are SO many ways to get there. Each route will eventually get you to your destination, but there are always changes and reversals while getting there. You'll still see lots of wonderful stuff on your journey, it just won't be in any particular, logical order. But, YOU WILL GET TO YOUR DESTINATION ... which, in this case, is Zack's finish with this disease!! :) We'll keep thinking LOTS of good thoughts for the Zack Man and keep saying our daily mantra ... "This too shall pass, this too shall pass". :)
We love you guys!
Debra, Kyle and MacKenzie
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