I have created this Blog for all our family and friends to stay up to date on Zack's journey. Please come and visit as much as you want. Thank You to all our family and friends for all the support we have recieved over the past several years. Zack is very lucky to have you all in his life. You support means the world to us.
Wednesday, April 23, 2008
DR. update
Zack has had styes over the past few months and have been seeing our regular eye DR and things took a turn on Friday when we went back. He now has these peeks in his eyes and look really scary. Luckily he says they do not hurt. Our Dr had no idea what they were and called our Stanford Dr. and after talking made and appointment to see an eye Dr at Stanford. We saw the eye DR at 8 on Monday and she said it was ehagtsdkjdfhus (well that's how it sounded) basically he has irritated tissue in his eyes. The peeks that have formed are just the mad tissue he has in his eyes. We are putting steroid ointment and drops to help it go away. Poor guy went through hell at the eye Dr though. She had to dilate his eyes to check everything better and she flipped his eye lids inside out and put the ointment in. He was screaming! After all that we went over to the hospital for his regular check-up. He had blood taken and a physical and overall the Dr's think he looks good, which is amazing to hear. We are now going to try and decide what treatment we are doing next. Dr. Lee is going to talk to his other Dr's to see if the study medicine is what is causing all the side affects and his eye issues. If so, we may not retreat him with the Rituximab medicine and go to the next step which is another type of an infusion that he would get 1 a month for 12 months. I was really hoping for the 2 year mark and him being in remission but I am think now that that is not going to happen. As long as he gets better that's all Morgan and I want. Keep your fingers crossed for him. I have said this before, he is such a trooper.
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Dermatomyositis
**DER MA TOE MY O SIGH TIS**
This is my way of sounding out his condition. It took me forever to try and say it and this is how I break it down.
1 comment:
Glad to read an update on Zack--
Don't despair- Remission will come maybe not as soon as you want it but have faith it will come-- for us it took 6 very long years before Austin was med-free. We now have to wait one full year before we can say he is on remission--- we can not wait but we know it will come. I totally can related to what you have gone throught this whole year.-- jackie
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